{"id":557,"date":"2019-11-11T12:55:15","date_gmt":"2019-11-11T17:55:15","guid":{"rendered":"http:\/\/www.salticid.com\/marathon\/?p=557"},"modified":"2020-12-29T12:59:46","modified_gmt":"2020-12-29T17:59:46","slug":"first-steps-on-the-journey","status":"publish","type":"post","link":"https:\/\/www.salticid.com\/marathon\/2019\/11\/first-steps-on-the-journey\/","title":{"rendered":"First steps on the journey"},"content":{"rendered":"<p><em>Written after talking to Jonathan at length, in preparation for asking my primary care physical about kidney donation<\/em><\/p>\n<p>I\u2019ve been aware of kidney donation for a long time but didn\u2019t start really seriously thinking about it until reading\u00a0<a class=\"bbc_link\" href=\"https:\/\/www.vox.com\/science-and-health\/2017\/4\/11\/12716978\/kidney-donation-dylan-matthews\" target=\"_blank\" rel=\"noopener noreferrer\">Dylan Matthew\u2019s story<\/a>. Donating whatever can be used after my death always seemed like a no-brainer. I was a timid child, afraid of pain but wanting to be brave, and I admired my dad\u2019s regular blood donation so much. I got physically braver as I aged and started donating blood myself in the 90s &#8211; I\u2019m nearing 10 gallons by now! In 2008 I volunteered with a young man who told me his story of donating bone marrow, which he described as one of the highlights of his life. I researched it and signed up with\u00a0<a class=\"bbc_link\" href=\"https:\/\/bethematch.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Be the Match<\/a>, but I\u2019ve never been called.<\/p>\n<p>I remember thinking \u201coh, I could never do that\u201d about kidney donation when I first heard about it. But so much has changed about the donation process, and I\u2019ve also undergone multiple similar surgeries so it\u2019s less scary to me (I had 3 operations for endometriosis, 2 full incisions and one laparoscopic).<\/p>\n<ul class=\"bbc_list\">\n<li>Nephrectomy is typically laparoscopic now and most people go home after 1-2 days and are back at a desk job in a few weeks.<\/li>\n<li>I would never want to individually choose a stranger to give to. The growing number of non-directed donors has normalized that choice (I read the\u00a0<a class=\"bbc_link\" href=\"https:\/\/www.newyorker.com\/magazine\/2009\/07\/27\/the-kindest-cut\" target=\"_blank\" rel=\"noopener noreferrer\">Larissa McFarquar article<\/a>\u00a0when it came out in 2009 and it made the donors seem kind of weird).<\/li>\n<li>Kidney chains, especially ones that are separate in time and space (as opposed to the simultaneous surgeries like in the\u00a0<a class=\"bbc_link\" href=\"https:\/\/greysanatomy.fandom.com\/wiki\/There%27s_No_%27I%27_in_Team\" target=\"_blank\" rel=\"noopener noreferrer\">Grey\u2019s Anatomy episode<\/a>) have revolutionized what one donation can do.<\/li>\n<li>This is really new and I had already made my decision before I heard about it: now you can give family members who might need a kidney in the future a priority\u00a0<a class=\"bbc_link\" href=\"https:\/\/www.kidneyregistry.org\/info\/voucher-program\" target=\"_blank\" rel=\"noopener noreferrer\">voucher<\/a>. We don\u2019t have kids and nobody has kidney disease in our families, so this is a nice extra for me, but if I had been on the fence this would have a been a huge relief that I wouldn\u2019t need to \u201csave\u201d my kidney for someone who might need it.<\/li>\n<li>I have a job with great sick leave and live very close to <a href=\"https:\/\/www.baystatehealth.org\/services\/surgery\/specialties\/transplant\/living-kidney-donors\">a transplant center,<\/a> but now time off and transportation costs are covered for most people.<\/li>\n<li>NKR offers various kinds of\u00a0<a class=\"bbc_link\" href=\"https:\/\/www.kidneyregistry.org\/info\/considering-kidney-donation\" target=\"_blank\" rel=\"noopener noreferrer\">insurance<\/a> too.<\/li>\n<\/ul>\n<p>Psychologically, I\u2019m drawn to kidney donation because it\u2019s a way to do something clearly good in the world. This is a way of giving back in gratitude for my ridiculously-good health. I\u2019m lucky to know I\u2019ll probably handle the surgery well: I don\u2019t get particularly anxious, I\u2019m fit, and I\u2019ve healed quickly in the past and know what my body needs. Plus it\u2019s a new adventure\/a big accomplishment if I succeed! It\u2019s a challenge on the scale of running a marathon (I\u2019ve done 3) but it will benefit other people and not just me.<\/p>\n<p>I have done so, so much research on this &#8211; that\u2019s my way when approaching a new challenge. There are a lot of first-person accounts out there now, luckily. My current favorite site is\u00a0<a class=\"bbc_link\" href=\"https:\/\/kidneydonorathlete.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Kidney Donor Athletes<\/a>. I hope I get to send them an article next year!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Written after talking to Jonathan at length, in preparation for asking my primary care physical about kidney donation I\u2019ve been aware of kidney donation for a long time but didn\u2019t start really seriously thinking about it until reading\u00a0Dylan Matthew\u2019s story. Donating whatever can be used after my death always seemed like a no-brainer. I was [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[],"class_list":["post-557","post","type-post","status-publish","format-standard","hentry","category-kidney-donation"],"_links":{"self":[{"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/posts\/557","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/comments?post=557"}],"version-history":[{"count":1,"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/posts\/557\/revisions"}],"predecessor-version":[{"id":558,"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/posts\/557\/revisions\/558"}],"wp:attachment":[{"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/media?parent=557"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/categories?post=557"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.salticid.com\/marathon\/wp-json\/wp\/v2\/tags?post=557"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}